Tuesday, April 7, 2009

Day 32

Hello Team Tom,
First, thanks for being on Team Tom. Whether you prayed, gave blood, watched Gabriel, visited Tom, kept Tom in electronic company, made food, sent packages, helped me out at work or some combination of these wonderfully supportive acts: you are on the team. And this has been a strong team. I often say: "If your partner has to go through a bone marrow transplant this is the way to do it." We're blessed and touched and excited.

Particularly we are excited because Tom's numbers finally shot through the roof yesterday. Most significantly, those elements of his white blood cells that are the most essential part of his immune system really took off:
  • White Blood Count: 3.8 k/uL (low end of normal is 4.0)
  • Absolute neutrophils: 1.5 k/uL (most prominent marker of his immune system function)
  • Red Blood Count: 3.59 m/uL (lowe end of normal is 4.2)
  • Hemoglobin: 10.6 g/dL (low end of normal is 13)
  • Hematocrit: 30.2% (low end of normal is 38%)
  • Platelets: 129,000 k/uL (low end of normal is 150,000)
  • Basophils and eosophils (just coming onto the radar from zero today)
Steve's stem cells and Tom's body have made peace, as the boys predicted. Tom hasn't felt ill since Thursday. Nausea and vomiting are also a symptom of Graft vs. Host disease (GVHD). So, as far as we can tell Tom's GVHD is mild. He feels strong and had a great time cruising around the sixth floor of Helford Hospital yesterday. Tonight bible study will be in the lobby. Tom has had only one red blood transfusion in the last two weeks and may not need another transfusion for some time if at all.
And (drumroll please) Tom will be coming home this week. Tom's blood counts are just fractions away from meeting the "send this guy home" goals. He's eating solid food (another "check") and is infection free (a minor bacterial infection from two weeks ago has passed). In preparation to return home Tom will be weaned off of i.v. medication and back onto oral medication. He will also undergo some tests, most significantly another bone marrow biopsy (wince). But, all so worth the reward.
Tom's mom is coming to stay with us to help complete the 24-hour observation period that will ensue over the next 30 days after Tom's release. Tom will visit City of Hope several times a week during this period and likely through the remaining 100 days of the acute transplant period. Over time the number of necessary visits will decrease and Tom will begin to get back to a normal routine.
I can't tell you the overwhelming relief that has come over me in the past day. I can feel all of the emotion and tension that had built up begin to seep out of me and the tears that I withheld for fear that they may never stop come more freely and are cultivated with joy. We can expect a few more challenges, particularly with keeping Tom free of infection, but he's definitely coming to the edge of the forest and approaching a bright open field.
On Sunday when Gabriel was marking off the day on his calendar and announced that Daddy would be home in five days. I began to fear that Tom wasn't going to be home by the time Gabriel marked that final date. So, I calmly said, "You know, Daddy might not be home in five days." He paused for a second, then turned to me and asked why. I said, "Daddy has some things he has to do at the hospital and he may not be able to get them all done by Friday." He paused again and said nonchalantly, "okay," and went about his business. Small crisis averted just by having a generally happy kid.
Gabriel and I have had great days and tough days, but overall I have just treasured this experience. Tom and I are both working parents. So, in the mornings and evenings we share Gabriel-related responsibilities and similarly throughout weekends. And, though I would never recommend single parenthood, I feel fortunate to have gotten to spend so much time with Gabriel, especially these last few weeks when we tapered off of the play dates. It reminded me what I'm missing when I'm trying to do a load of laundry or run to the store without a preschooler in tow. He really does add great color to what I think of as mundane tasks that I just need to get done as quickly as possible while Tom plays with him. There are so many cliches out there about the time we lose with our kids worrying about the business of living. It takes focus, work, and, in our case, a health crisis to allow the wisdom behind those cliches to sink into my bones. I'm making a mental list of the blessings that have appeared both quietly and with a clatter throughout this process. And it's all a nice confirmation of the divine plan that is so foreign to the plans of humans.
With love and anticipation, The Highland Park DuBranskys

1 comment:

Anonymous said...

Dear Barbara,

My name is Kimberly Spradlin and I'm a friend of Tanisha's. I was blessed that my husband and I were able to attend Marc and Tanisha’s wedding this summer and watch your wonderful family. I've followed your family's story after Tanisha shared with me about Tom's diagnosis. While I know I don't have the same story...three months into our marriage my husband received the diagnosis of Testicular Cancer. As of August it will be 11 years and we now have an 8 year old and 4 year old. I often do a presentation about Caregiving and I use the word "we" a lot instead of he. “We” went through cancer. “We” went through chemo. “We” went through the side effects of the chemo. “We” went through the surgeries. I explain to the audience that the word cancer didn’t just effect him… it effect us and we faced it as a team. He will often share with people that he believes I had it harder. Why? His answer is, All I could do was watch and wait but he could feel and had more control over his body and thoughts.

Your post is so true. My favorite book, The Fearless Caregiver: How to Get the Best Care for Your Loved One and Still Have a Life of Your Own By: Gary Barg talks about the caregiver being part of a team. I encourage people to take this approach during my presentation. It takes so many people to get loved ones through such struggles.

I guess the reason for this post is to tell you that you all are in our prayers. I sent a message to Tanisha yesterday noting that there hadn’t been a post in a while so I was assuming that must be a good sign. She said it was going well and then today you wrote a post. Because of your struggles I signed up to be a bone marrow donor while I know it wouldn’t help your family maybe one day it will help someone. Your point is well taken about rushing to get things done or running an errand without your son. I often do that and maybe I should take a step back and enjoy that time with my girls even if they do drive me a little crazy sometimes. Faith, my 4 year old, is in the stage of asking questions all the time and maybe I should step back and enjoy this time with her because I too work and don’t get many hours during the work week with them before bedtime. They do grow up fast.

May you continue to stay strong. May Tom come home soon.

From one caregiver to another,

Kimberly Spradlin